October 6, 2006

  • Too important to do as a protected post:


    I am doing the Susan G. Komen race for a cure on November 5th.  For those of you who don't know, our daughter Sarah, was named after Sarah T.  She was a dear friend of ours from high school, who lost her battle with breast cancer shortly after her 30th birthday.  I am also raising money for the cure, click here to donate.  Every bit helps!

September 3, 2006

  • This was in today's paper.  Dr. Hughes is the doctor we have been talking to in Michigan.


    Genetic testing of embryos can determine predisposition to cancer


    NEW YORK TIMES NEWS SERVICE

    September 3, 2006

    Prospective parents have been using a procedure known as preimplantation genetic diagnosis for more than a decade to screen for genes certain to cause diseases that are severe and largely untreatable, like Huntington's disease, a neurological disease that typically doesn't surface until middle age.

    A growing number of couples are crossing a new threshold for parental intervention in the genetic makeup of their offspring: They are using preimplantation genetic diagnosis to detect a predisposition to cancers that may or may not develop later in life and are often treatable if they do.


















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    The test requires couples to use in vitro fertilization so that cells for screening can be removed from multicelled embryos, and it is not completely effective: There is up to a 3 percent chance that preimplantation genetic diagnosis will fail to detect an unwanted mutation.


    Geneticists and fertility experts say the greater use of preimplantation diagnosis may lead to using it to select characteristics that range from less serious diseases to purely matters of preference.

    “From a technology perspective, we can test anything,” said Mark Hughes, director of the Genesis Genetics Institute in Detroit, who is performing preimplantation genetic diagnosis this month for two couples who want to avoid passing on a susceptibility to breast cancer. “The issue becomes what is considered serious enough to warrant such testing and who decides that.”

    Some who carry the cancer mutations said they take offense at the selection procedure, which they say implies that they themselves, and many members of their family, should never have existed. It raises the specter of eugenics, they say, in the most personal terms.

    “It's like children are admitted to a family only if they pass the test,” said Denise Toeckes, 32, a teacher who tested positive for a mutation that increases the risk of breast cancer. “It's like, 'If you have a gene, we don't want you; if you have the potential to develop cancer, you can't be in our family.' ”

    Other critics oppose preimplantation diagnosis on the grounds that it could be used to select against homosexuals, women or people with disabilities. It reduces people to their genes, they say, and paves the way for the pursuit of children to suit parental ideals and for discrimination against those with perceived imperfections.

    Chad and Colby Kingsbury of Chicago took two months to make the decision to undergo genetic testing. But every time Chad looks at his daughter, Chloe, he said he knows it was worth it. “I couldn't imagine them telling me my daughter has cancer,” he said, “when I could have stopped it.”

August 26, 2006

July 17, 2006

  • I have lots to write about tonight, so there is both a Protected Post, and a Public Post.  So, if you are on my protected list, make sure you read that post.  Oh, and please only comment about the protected post, on that post.  Thanks.


    By popular demand, here is my recipe for my Peanut Butter Balls.


    1 Pound Margarine
    1 Quart PB (equates to 32 oz) (I use Skippy)
    2 Pounds Powder Sugar
    1 1/2 large bags of Chocolate Chips


    Supplies:
    Tooth picks
    Candy Cups
    Double Boiler


    Melt margarine in large pot.  Add peanut butter.  Stir until smooth consistency.  Add powder sugar.  Mix well.
    Allow the mixture to cool (I usually turn off the heat when I add the powder sugar.  Roll into teaspoon size balls  Place on cookie sheet, stick with toothpick.  Melt chocolate in double boiler.  Dip balls into chocolate, may need to use a spoon to get off ecess chocolate.  Remove toothpick when you place the chocolate covered peanut butter into cup.  Cover top of peanut butter ball with chocolate, using the spoon (I will make a swirl pattern as I do this).  Allow to cool.


    Enjoy with milk and your friends.  Oh yeah, this recipe makes about 100 peanut butter balls... depending on how big or small you make them.  And, you have to add the ingredients in order.  If not it will not work, and make sure you don't use too much peanut butter (It will not roll well).

July 13, 2006

  • This Weblog is protected, and to read it you need to be on my protected list.  I do have a Xanga tracker, and I see who come by this site.  If you aren't going to leave a comment, and you are not on my protected list, then go away!


    For those of you who are on my protected list... check out my latest entry

July 8, 2006

  • Dear Mr. Hallmark,

    I am writing to you from heaven, and though it must appear
    A rather strange idea, I see everything from here.
    I just popped in to visit, your stores to find a card
    A card of love for my mother, as this day for her is hard.

    There must be some mistake I thought, every card you could imagine
    Except I could not find a card, from a child who lives in heaven.
    She is still a mother too, no matter where I reside
    I had to leave, she understands, but oh the tears she's cried.
    I thought that if I wrote you, that you would come to know
    That though I live in heaven now, I still love my mother so.
    She talks with me, and dreams with me; we still share laughter too,
    Memories, our way of speaking now, would you see what you could do?

    My mother carries me in her heart, her tears she hides from sight.
    She writes poems to honor me, sometimes far into the night
    She plants flowers in my garden, there my living memory dwells
    She writes to other grieving parents, trying to ease their pain as well.

    So you see Mr. Hallmark, though I no longer live on earth
    I must find a way, to remind her of her wondrous worth
    She needs to be honored, and remembered too
    Just as the children of earth will do.

    Thank you Mr. Hallmark, I know you'll do your best
    I have done all I can do; to you, I'll leave the rest.
    Find a way to tell her, how much she means to me
    Until I can do it for myself, when she joins me in eternity.

June 6, 2006

  • Xanga Lock Out

    I love having the foot prints from xanga.  But I just got a little creeped out that someone googled me to find my blog.  So, I am going to do the xanga lockout.  For my family who is beginning to understand xanga, all that means is you have to be logged onto xanga to read my blogs... which you have to do anyway, since my blogs are mostly protected.


    I do update my protected blog about every other day... depending on what is going on in our lives.  I will do a protected update tonight.  Meanwhile, I have to get ready to go vote and then go to work.

May 29, 2006

April 3, 2006

  • UCLA Sends Twin Home


    Nick Draper's new heart is beating so strongly that he no longer needs full-time nursing care.

    By Kurt Streeter, Times Staff Writer
    April 2, 2006


    Nick Draper, the 8-month-old identical twin who nearly died after receiving a heart transplant in February, was discharged from UCLA Medical Center on Saturday and allowed to go home with his parents for the first time.

    UCLA doctors, who had been monitoring Nick for weeks, said he had passed a major hurdle: His new heart is beating so strongly that he can live without intravenous medication, feeding tubes and full-time nursing care.

     

    "No tubes, no wires, he's unattached for the first time," said his mother, Nicole, who had never seen her baby outside of a hospital until Saturday. "He's free!"

    Flanked by her husband, Mike, Nicole carried Nick from the hospital to a hotel across the street, where the couple have lived with three of their other children since January. It was the first time, Mike Draper said, that his baby had felt the sun or had wind hit his face.

    Nick and his twin brother, Nate, were born in Phoenix, the Drapers' hometown, with a rare and deadly heart deformity known as dilated cardiomyopathy. Barely clinging to life, the twins were taken shortly after birth to UCLA's Mattel Children's Hospital, regarded for its cardiac care.

    Because Nate initially wasn't healthy enough to get a new heart, Nick was placed on the transplant list first and remained ahead of his brother. From the start, doctors said that both boys probably would die if they did not get transplants by the time they walked or shortly after. By then their bodies would need hearts that worked efficiently.

    On Feb. 16, Nick received a new heart in a tense, five-hour transplant operation. The new heart failed to pump strongly. Doctors scrambled to keep Nick alive by attaching him to a heart-bypass machine.

    The boy remained on bypass for several days, his chest left open because doctors worried that the heart would be rejected. Within two weeks, though, the transplanted heart began to work well and doctors sewed up his chest.



    Since then, Nick has been weaned off drugs that kept his heart pumping. On Saturday morning, when the latest tests showed the heart to be beating normally, doctors decided to let Nick leave the hospital.

    His brother, Nate, remains in an intensive care ward at the hospital as he awaits a transplant. Nate's condition has stabilized over the last few weeks, said cardiologist Dr. Juan Alejos, though he is still badly in need of a new heart.

    Despite having one child still in the hospital, Mike and Nicole Draper could hardly contain their happiness as they prepared to leave with Nick. In a white bag, they bundled up the toys and blankets that have been in Nick's hospital room most of his life. They both smiled broadly, despite the work and worry ahead.

    Nick will have to be given up to 11 medications and 20 doses a day to keep his new heart from being rejected and his blood pressure and cholesterol from spiking. The Drapers will have to limit his physical activity. His weakened immune system will leave him susceptible to cancer.

    What's more, transplanted hearts don't last. Doctors at UCLA have found that children live an average of 10 to 12 years before the organs are rejected.

    Sometimes rejection can be staved off with another transplant. Sometimes it leads to death. Nick's family is pinning much of their hope on medical breakthroughs that might increase the lifespan of Nick's new heart.

    The future and its uncertainty seemed far away Saturday as Nick left the hospital, cradled in a white blanket and his mother's arms.

    Nick and his mother were surrounded by his father and three of his siblings: Caitlin, 6, and Emma and Brendan, both 5. As the family walked slowly out of a side entrance, a rush of cold wind hit Nick's face. Nicole Draper bundled Nick up a bit more. She walked him out of the shade and into sun.

    "Oh, this is it, the outside, bud," Mike Draper said, looking at his son and grinning. "This is the outside, little man."






    On April 7th the family's story will be on 20/20.  Please check your listings for your local network and time.

     

    Remember, April is Organ Donation Awareness Month!

April 1, 2006

  • We have gone completely protected.  I will be updating the protected list, but in the meantime, leave a comment if you want to be added.  I will let you know if you have been added by leaving a comment on your site.  By the way, if I am a subscriber to your site, you have been added.